Beatriz Núñez Angulo (coordinator)
Her research interests are focused on educational and therapeutical needs of disabled population. Her professional activities are mainly devoted to people suffering from cerebral palsy and other diseases. She has conducted research activities consisting in the implementation of communication resources for disabled people and has produced scientific publication in this field. She has presented his research in international conferences, and participated in national projects.
José María Cámara Nebreda
He received the BS in Telecommunications Engineering and MS in Electronic Engineering. He received his PhD at the University of Cantabria. His research interests include different solutions for computer architectures, electronic hardware design and human device interfaces. He has presented his research in national and international conferences, and participated in national projects, and he has produced several scientific publications and patents.
Rosa María Santamaría Conde
She worked as school teacher for eleven years. All along that period she was member of Educational and Psycho-pedagogical Orientation teams. Currently, she heads the Department of Educational Sciences. Her Research has been certified by ANECA and is the current leader of DINper Research group. She has a number of publications in specialized magazines. Her latest research has dealt with higher education in the European context, education in values and management of educational institutions.
Pedro L. Sánchez Ortega
He received the BS in Industrial Electronics Engineering and the MS in Industrial Management at the University of Burgos. His research interests include hardware and software assistive technologies. He is an active member of the DINper. He has taken part in the development of a number of hardware and software solutions to help disabled people in their daily life. He has presented his research in national and international conferences, and participated in national diferent projects. He has produced scientific publications and patents.
Marta Fonfría Solabarrieta
Pedagogue and Social Educator. Professor, Faculty of Education at the University of Burgos. Member of DINper. Social educator, National Public Resource Centre of Rare Diseases, development and coordination of social and training projects, personal and organizational support programmes, coordination of transnational European projects. Member of Working Group European Network Resource Centres of Rare Diseases. Working Group Expertise EUCERD Joint Action Working for Rare Diseases (WP6) European Specialised Social Services.
Wilco M.H. Verbeeten
He received his MSc. degree in Mechanical Engineering and, in 2001, he got his PhD degree at the Eindhoven University of Technology, the Netherlands. His experience and research interest is related to the development of unique and personalized applications through additive manufacturing techniques, such as 3D printing. He has published scientific and technical papers, has presented his research in over international conferences, and participated in European and national R&D projects.
Miriam Lorenzo Bañuelos
She received the BS in Industrial Mechanical Engineering and the MS in Industrial Management and received her PhD at the University of Burgos. She is working as a professor at the same University. Her research interests include projects related to the characterization of mechanical properties of materials and design using additive manufacturing and 3D printing technique’s. She has produced several scientific publications and patent.
José Antonio Gómez Monedero
Professor and PhD at University of Burgos Special Education Specialist and Speech therapy. During 6 years Project Coordinator: Attention to persons with disability at Burgos University. Project: Alternative Communication. He has produced diferent scientific publications.
Mario Alaguero Rodríguez
Professor at University of Burgos in Audiovisual Communication and Media Development. His research is about the capabilities of new technologies to improve the teaching dynamics and culture dissemination and he is specyalized in social communication.
Mª Eugenia Estepa Mohedano
Degree in Sociology and Social Work from the University of Granada. Working in the guidance department of the Colegio Buenafuente de Educación Especial since 1997 and as a Representative of the Ownership since 2014.
Beatriz Pereña López
Degree in Education Sciences Special Education branch from the University Complutense of Madrid. Working as a Therapeutic teacher at Colegio Buenafuente de Educación Especial since 1983 and as a Teacher Director since 2018.
Mª Dolores Astillero Díaz-Miguel
Diploma in Primary Education specialising in hearing and language from the University Complutense of Madrid. Sign language interpreter. Expert in intervention and evaluation in specific language disorder by the University of La Salle of Madrid. Working as a Speech Therapist at Colegio Buenafuente de Educación Especial since 2014.
Karel Van Isacker
Karel has a background in applied economic sciences/MBA. After a career in the software integration business in Belgium and Greece, he focused on inclusion in every aspect of life from 2005 onwards: from accessible software solutions to education and employment. He has been managing many projects in this field since 2005 on behalf of universities, end-user organisations and European umbrella organisations, as well as his own company PhoenixKM. Focus was in many of them on ensuring that the end-users needs are taken onboard, while he is also providing consultancy & training on disability aspects, in cooperation with local end-user organisations.
Maria Goranova
Maria has master degrees in Applied Psychology, International relations and English philology. She has more than 20 years’ experience in project management and implementation of European projects (LLL, FP7, LLL, Erasmus+). She is an allround expert in the field of inclusive education and employability of people with disabilities, and has been the founder of a number of inclusion initiatives.
Valère Awouters
He is Master in commercial and business sciences and Master of Science in e-learning, multimedia & consultancy. He is coordinator of the research group [ed+ict], education & ict within UC Leuven-Limburg since 2007. The research group [ed+ict] was founded in the teacher training department and has grown in many research areas in the different groups or departments of UC Leuven-Limburg: Management & Technology, Health-care & Wellbeing and Teacher Training. Valère Awouters is also co-founder of the research group’s spin-off company CETIT bvba (Center for Educational Technology, Innovation & Training, 2011).
Ruben Jans
Graduated as teacher secondary education and is Master of Science in Technology Enhanced Learning, Innovation and Change (Sheffield Hallam University, UK, 2010). He is lecturer in UC Leuven-Limburg and researcher in the research group [ed+ict]. The research group [ed+ict] was founded in the teacher training department and has grown in many research area’s in the different groups or departments of UC Leuven-Limburg.
Antonella Valenti
Full Professor of Pedagogy and Special Education at University of Calabria. She coordinates the degree course in Primary Education Sciences, that enables to teach in primary school and kindergarten. She is Rector’s Delegate for Disability and Learning Disorders. She is Member of the Italian Society of Special Education (SIPeS), Italian Society of Educational Reserch (SIRD), Italian Society of Pedagogy (SIPED), Italian Association for Research and Intervention in Learning Psychopathology (AIRIPA).
Lorena Montesano
Psychologist with a Master’s Degree in Clinical Psychology at the University of Padua with research thesis, entitled ” A study on a scale for the individuation of special educational needs and, in particular, of children with text comprehension difficulties”. Master’s Degree in “Psychopathology of Learning” at the University of Padua. Since 2016 she has been a research fellow at the University of Calabria, where carries out research activities in the field of adult SLD. Member AIRIPA (Italian Association for research and intervention in psychopathology of learning)
Pamela Lazzolino
Organizer lecturer of the internship at the Degree Course in Primary Education Sciences. She has Phd in Ethnography and Anthropology disciplines. She is Honorary Fellow in Methodology of educational research; Theory and methods of assessment; General education; Teaching and Special Education I; Teaching and Special Pedagogy II; Pedagogy and Educational Inclusion. She is a laboratory teacher at the training course for the achievement of Support Specialization Activities at the University of Calabria.
Sonia Sapia
Organizer lecturer of the internship at the degree course in Primary Education Sciences. She is Honorary Fellow in Methodology of educational research; Theory and methods of assessment; General education; Teaching and Special Education I; Teaching and Special Pedagogy II; Pedagogy and Educational Inclusion. She is a laboratory teacher at the training course for the achievement of Support Specialization Activities at the University of Calabria.
Giovanni Frontera
Ph.D. in “Psychology of Programming and Artificial Intelligence” with thesis on “adaptive models and e-learning support intelligent agents”. It was post-doc researcher and since 2003 conducts research at the University of Calabria in the field of educational technology and online learning environments. He was visiting researcher at the Facultad de Humanidades y Educación, University of Burgos, Spain. During this period, he also worked as a lecturer in “Evaluación de centros, programas y profesores” and “Methodology didáctica” within the Study in Education.
Joana Santos
Social Work Degree at University Trás-os-Montes e Alto Douro (UTAD); Master’s Degree in Gerontology at the University of Aveiro.
Recently Project Management and International Affairs Coordinator and Social Worker of Casa dos Marcos’ Social Services. Since 2016 worked at Raríssimas’ helpline – Linha Rara.
Research Team Member at Respiratory Research & Rehabilitation Laboratory (Lab3R) – Univ. Aveiro. Immigrant Support Technician at Local Support Center for Immigrant Integration (CLAII); Victim Support Technician at Portuguese Victim Support Association (APAV).
Marta Lopes
Psychologist with a Master’s Degree in Clinical Psychology at the University Institute of Applied Psychology – ISPA.
Currently, since 2013, she works in Raríssimas as Portuguese Rare Disease Helpline Psychologist, and more recently with the International Affairs and Project Management.
Rui Ramos
Physiotherapist graduated by Escola Superior de Saúde (ESS) – Instituto Politécnico do Porto. Education in Paediatric osteopathy, Postural control and neurodevelopment in children, Vestibular rehabilitation and Respiratory physiotherapy.
Professional experience in physical rehabilitation in rare diseases, working at Raríssimas, since 2010. Currently, coordinates Raríssimas’ Development and Rehabilitation Centre at Maia.
Member of Raríssimas’ direction board from 2018 to 2019, as treasurer.
Daniela Pereira
Occupational Therapist, with training accredited by the Instituto Politécnico de Beja- Escola Superior de Saúde in 2016 with a specialization in Rehabilitation of the Upper Limb at the Instituto Politécnico de Leiria- Escola Superior de Saúde in 2019/2020.
Throughout her professional career held specific training courses in the Son-Rise Program and general approaches in basic life support, integrating social responses in the Playful Center of IPBeja.
Occupational Therapist at Raríssimas Development and Rehabilitation Center since 2020.
Javier Pérez-Mínguez Caneda
Degree in Journalism from the Complutense University of Madrid, and master in Specialization Management in Foundations at the CEU University of Madrid, he has experience in health consultancy communication and leading teams. He is currently Ana Carolina Díez Mahou Foundation Director. He is also National Board Member from Asociación de Enfermos con Patología Mitocondrial (AEPMI). Moreover, as a parent of a mithocondrial disease child, he has a big personal experience in disability world.
María Careaga
Degree in Social Work from the University of Huelva in 2011. Currently, since 2012, she works in the Association of Patients of Mitochondrial Pathologies AEPMI in the area of Social Work in which she works on care, information, advice to Families, aid management and social reporting. He also has experience in administration, basic accounting, project and grant management, social research project and volunteering.
Jimena Francos Sánchez
With a background as an Engineer working in developing projects in South-America and Africa, as a mother of a 16 year-old mitochondrial disease child, she has a large experience working with different systems and devices for communication and learning processes.